Sunday, February 22, 2009

We're Not Off the Roller Coaster Ride Yet!

Friday Katelyn had another seizure. It had been a little more than a year and a half since her last one in the NICU. We thought they were a thing of the past for her. We were wrong. The roller coaster has certainly slowed in the last year, but we're still on the same ride and this has definitely reminded us of that.

She hadn't been herself for over a week. She wasn't eating well and her sleep patterns were messed up and she was really fussy off and on. On Friday morning I put her down for a nap 2 hours early after a lot of a screaming and called for a doctor’s appointment. Three hours later I was in the kitchen making lunch and Derek said "Mom, why is Katelyn shaking like that?" He had seen her fall down and start seizing. I looked down to see her having a grand mal seizure and turning blue. I picked her up and ran for the phone. I would love to say that I was calm, cool and collected but I was hysterical. I set her down (remembering you aren't supposed to hold someone who is seizing) she regained some color and the 911 operator tried to calm me down as she asked all of her questions about what Katelyn was doing. The good news is that she came out of it on her own relatively fast. It's hard to say for sure, but I would guess the seizure was about 3 minutes and it stopped on its own. So that is good. Her other two seizures were longer and they had to give her a lot of drugs to stop the seizing.

So after an ambulance ride with my little princess, a long and useless trip to the ER (they don't do anything if they aren't seizing anymore) we kept our appointment with the pediatrician who did some labs. The first bunch are normal - her electrolytes are fairly normal, she isn't anemic, etc.. We are still waiting for the labs to come back to tell us if she might have c-diff again or maybe roto virus.

Tuesday we'll go up to PCMC for a sleep-deprived EEG (fun huh??) and then meet with a neurologist later in the day.

Saturday was a whole new day for her. She was eating well and was much more like her normal, cute bubbly self.

The trauma of seeing her have a seizure just brought back all the emotions of the NICU days and the fear of the unknown. But knowing how dangerous seizures can be and the impact they could have on her future made it all very emotional for me.

But today is another new day. She is happy and darling as ever today and seizure free. She and I are up before everyone else today. She snuggled up next to me while I did most of this post but is now her busy-little self.

Here is the link to September 2007, to the posts about her last seizures (start at the bottom):

Friday, February 13, 2009

A Handful of Photos

Katelyn put on Derek's shirt.

Brandon wanted some attention too!

Yes, those are Brandon's pants on Katelyn's head.

She loves to dress up and to take pictures.

Blake thinks he strong enought to drag them all.

A look inside the van.

A Broken Back

So five weeks ago I took my boys sledding. We had a super fun time sledding down the hill at the local junior high on a Saturday afternoon. Although the snow wasn't fresh, there was plenty of it and we had a ton of fun. But the last run of the day Derek and I hit a man made jump on the hill and flew up high and came down HARD! I've been in pain ever since, but todayI found out I have a conpression fracture. Bummer. I think the worst news is that if I had gone in right away they could have injected a superglue-like stuff into the vertibrae and fixed it right away - no more pain. But on the updside, it takes bone 6-8 weeks to heal so we're getting there.

Here we are with our matching boots!

Monday, February 2, 2009

Derek Bowling

Amy took a video of Derek bowling using her cell phone. The quality isn't great but you just have to see it.

They are porking up!

I took Brandon and Katelyn to the pediatrician for thier Synagist today. Before they can recieve the shot they have to be weighed and measured and thouroughly examined. If they had anything that could be RSV they can't have the shot and they have to calculate exactly how much to give them. So through the winter they are weighed and measured every 28 days. Kind of discouraging usually. Last month Katelyn had lost 2 1/2 oz and so we got the referral to see a pedicatric endocrynologist. But today we went in and they had both gained a pound and grown almost an inch too! And I have been weighing them myself so I really trust the weight. The pediatrician was so excited! From there the appointment kind of went south, the nurse that administers the synagis came in and said it had only been 21 days since their last shot and so we would have to come back in 7 days. Kind of a bummer for us all. The boys are out of school today and so I am sure they would have rather done something more fun than that this morning but they were really good sports!